korrents

korrents · piece

matt.might.net

Matt Might · by 14 Feb 2015

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Every claim below was made in this piece, quoted word for word and numbered in the order the piece makes them, so you can read it there rather than take our word for it. The sentence above each quote is our reading of the claim, not their wording. Each quote was checked against a stored copy of the page at build time; where the two differ, the quote is the fact.

  1. Our reading

    A large national research cohort must transition from a pull model to a push model of medical research to achieve desired scale and cost.

    Their wordsTo operate at the desired scale and at the desired cost per participant, the large national cohort must switch from a "pull" model of medical research to a "push" model of medical research, and it must reimagine participant engagement.

  2. Our reading

    A federated model of distributed, heterogeneous electronic health records is the only feasible model for a large research cohort in the near term.

    Their wordsI now accept that a federated model of distributed, heterogeneous EHRs is the only feasible model for the cohort in the near term.

  3. Our reading

    The inclusion of children in a national research cohort is necessary to capture the most valuable genotype-phenotype pairings.

    Their wordsHowever, I think this aspect of the project will have limited success unless children are included in the cohort. The grim actuarial reality of rare disease is that many who suffer are children.

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